Most of you may recognize the first two acronyms above, but not the third. An ABR is a hearing test. Jaxson has fluid in both ears, and this test will show if his nerves are working correctly or if he's going to have some kind of hearing loss. I've taken him to the audiology department twice, but he's supposed to sleep through the test and he won't do it. So, since he is under anesthesia today, I was able to arrange for them to do it while he's in recovery. Hopefully I'll get some answers!
Jaxson is also having his brain MRI, spinal MRI and brain 3D CT. The 3D image and spinal MRI are in preparation for his two surgeries. The brain MRI has been ordered by genetics to see if there's any abnormality in his brain that would cause his bones to fuse early. I have no idea if I'll get the results today or not, but I hope I walk out of here with at least a little bit of knowledge.
So I've been here since 9am and Jaxson is still getting his tests done. It's giving me a little taste of what's going to come on Monday and I can say I don't like it one bit. Jayson came down for a little bit and I got to see Jeffrey, which was nice, but he had to go take a nap so I'm hanging out by myself. At least on Monday I will have company. Sara is nice enough to watch Jeffrey for us, so I'll have Jayson with me the whole time. Mom and dad are both taking the day off of work, so they'll be there too and Sam is coming up from Dayton to visit for a little while. Regardless, it's going to be a very long day.
I'm going to have to remember to bring extra blankets on Monday, though. It is freezing in here! I have my huge winter jacket on and a blanket over my legs. My fingers are purple!
In brighter news, I started some medication almost 2 weeks ago and it seems to be doing the trick. I feel like I have a good grasp of what's going on and how to deal with it now. I'm still worried that something is going to happen to Jaxson, but I don't feel like it's taking over my life. I feel like I can function again and I've been able to play with Jeffrey and do my job at work. I don't feel like it's giving me a fake happy, which is nice, but definitely evening me out. The only major side effect I have from it is that it makes me tired, but that is getting better every day, so hopefully I'll feel normal again soon.
Jeffrey is such a good big brother. He is always trying to help with feeding and calming down Jaxson. And Jaxson just laughs at him! It's hysterical. And today when Jayson brought Jeffrey up to see me after he went to the clubhouse, he asked where baby brother was. I didn't even know what t say. I just told him brother was busy. Next week is going to be as hard on Jeffrey as it is on me and Jayson. I'm so glad I took the week off so I can spend some time with him. He's so sensitive to everyone around him and he picks up on our stress so easily. He's such a sweet little boy!
Now I've been here for about 4 hours and Jax is still getting his scans done. At least, according to the tracking on the monitor he's still in procedure. Hopefully he'll be done soon so I can at least go see him, even if he is still asleep. Jeez, if I think this is hard, what is Monday going to feel like? I've only been way from Jaxson for 2 hours and Monday is a 4.5 hour procedure. Ugh. Trying not to think about it too much for now. I guess I'm gonna try and eat something and cross my fingers that someone comes to get me soon! Prayers please.
